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Ethical Tensions Resulting from Interpreter Involvement in the Consent Process.

Amelia Barwise1, Richard Sharp2, Jessica Hirsch3

  • 1Assistant professor of medicine and a research associate in the Division of Pulmonary and Critical Care Medicine at the Mayo Clinic Rochester.

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When a medical interpreter refused to co-sign consent for a limited English proficiency participant, the institution navigated ethical principles. This case highlights balancing participant protection with interpreter professional guidelines.

Keywords:
human subjects researchinformed consentlimited English proficiencymedical interpreterstranslation

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Area of Science:

  • Medical Ethics
  • Clinical Research Ethics
  • Interpreter Professionalism

Background:

  • Informed consent is crucial for ethical clinical research.
  • Individuals with limited English proficiency require specialized support during consent.
  • Medical interpreters play a vital role in ensuring comprehension and voluntariness.

Observation:

  • An interpreter refused to co-sign consent documents for a participant with limited English proficiency.
  • The refusal stemmed from concerns about the participant's understanding and voluntary enrollment.
  • This situation presented a conflict between research ethics and interpreter professional ethics.

Findings:

  • The institution developed a response prioritizing participant rights and ethical considerations.
  • The approach balanced the Belmont principles (respect for persons, beneficence, justice) with interpreter guidelines (beneficence, fidelity, cultural respect).
  • The case underscores the complexities of consent processes involving vulnerable populations and professional interpreters.

Implications:

  • Institutions must have clear protocols for addressing interpreter concerns in research.
  • Ethical frameworks need to encompass the unique roles and responsibilities of medical interpreters.
  • Protecting vulnerable research participants requires careful consideration of communication barriers and professional integrity.