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Whose Responsibility Is It to Dismantle Medical Mistrust? Future Directions for Researchers and Health Care Providers
Jessica Jaiswal1,2,3,4
1a Department of Health Science, University of Alabama.
Abstract:
Medical mistrust persists and appears to be growing. The public health literature on medical mistrust has largely focused on mistrust among Black and African American populations due to legacies of abuse and mistreatment, such as the infamous Tuskegee Syphilis Study. However, research is now emerging that explores mistrust among various populations and in varying contexts, and the literature now largely emphasizes the role of ongoing, present-day social and economic inequalities in shaping and sustaining mistrust, particularly among populations who experience staggering health disparities. This special issue showcased nine articles exploring medical mistrust among diverse populations, exploring a wide array of topics and spanning myriad methodologies. In addition to a rigorous systematic review of the literature, this issue covers several critical subareas of the health disparities literature, including preventative health screenings among Black men, discrimination and cultural factors among rural Latinx communities, health care satisfaction among Latina immigrant women, the complex relationship between HIV testing and "conspiracy beliefs" among Black populations, pre-exposure prophylaxis use among transgender women, the impacts of mass incarceration on HIV care, eHealth interventions to address chronic diseases among sexual minority men of color, and participatory research to engage underserved populations as co-researchers. The purpose of this article is to provide a brief summary of the nine manuscripts in this special issue and to outline some recommendations and future directions for research on medical mistrust.
Insights
Medical mistrust is growing, influenced by historical abuses and current social inequalities. This special issue examines mistrust across diverse groups, highlighting health disparities and future research needs.
Area of Science:
- Public Health
- Health Disparities Research
- Sociomedical Sciences
Background:
- Medical mistrust is a persistent and growing public health concern.
- Historically, focus has been on Black populations due to past mistreatment (e.g., Tuskegee Syphilis Study).
- Emerging research emphasizes ongoing social and economic inequalities driving mistrust, especially in populations with health disparities.
Purpose of the Study:
- To summarize nine articles from a special issue on medical mistrust.
- To explore mistrust among diverse populations and contexts.
- To outline recommendations and future research directions for medical mistrust.
Main Methods:
- Systematic review of existing literature.
- Inclusion of nine diverse articles spanning various methodologies.
- Exploration of specific sub-topics within health disparities.
Main Results:
- Articles covered preventative screenings for Black men, discrimination among rural Latinx communities, and healthcare satisfaction for Latina immigrant women.
- Explored HIV testing, pre-exposure prophylaxis use among transgender women, and impacts of mass incarceration on HIV care.
- Included eHealth interventions for sexual minority men of color and participatory research with underserved populations.
Conclusions:
- Medical mistrust is multifaceted and influenced by both historical and contemporary factors.
- Addressing mistrust requires understanding diverse populations and social determinants of health.
- Future research should focus on interventions and community-engaged approaches to mitigate medical mistrust.
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