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Checklist for gene/disease-specific variation database curators to enable ethical data management

Rosemary Ekong1, Mauno Vihinen2

  • 1Department of Genetics, Evolution & Environment, University College London, London, UK.

Human Mutation
|July 27, 2019
PubMed
Summary

Ethical guidelines for variant and phenotype databases are crucial for advancing research. This work provides practical steps for database curators to ensure responsible data handling and privacy protection.

Keywords:
data collectiondata curationdatabase curatorsethical data managementgenetic variation databasespractical checklistsharing variant data

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