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Sleep problems in Korean children with Down syndrome and parental quality of life

E K Choi1, E Jung2, M Van Riper3

  • 1Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, Seoul, South Korea.

Journal of Intellectual Disability Research : JIDR
|July 30, 2019
PubMed

Insights

Most children with Down syndrome (DS) experience sleep problems, impacting families and affecting parents' quality of life (QOL). Early intervention is crucial for managing these sleep issues in children with DS.

Area of Science:

  • Pediatric Sleep Medicine
  • Developmental Disabilities
  • Quality of Life Research

Background:

  • Sleep problems are prevalent in children with Down syndrome (DS), significantly affecting the child, parents, and family unit.
  • These sleep disturbances can have profound implications for the overall well-being and daily functioning of individuals with DS.

Purpose of the Study:

  • To evaluate parent-reported sleep problems in children with Down syndrome (DS).
  • To examine the relationship between sleep behaviors in children with DS and their parents' quality of life (QOL).

Main Methods:

  • A cross-sectional survey was conducted with parents of children with DS recruited from an online support community in South Korea.
  • Sleep problems were assessed using the Children's Sleep Habits Questionnaire, and parents' QOL was measured using the WHO Quality of Life scale.

Main Results:

  • 83% of parents reported sleep problems in their children with DS, who exhibited more resistance, night waking, parasomnias, and sleep-disordered breathing than typically developing children.
  • Older age, male sex, and more severe developmental delays were identified as risk factors for sleep problems in children with DS.
  • Sleep problems in children with DS were found to negatively impact parents' QOL.

Conclusions:

  • Sleep problems significantly affect children with Down syndrome and their families, highlighting the need for clinical awareness.
  • Healthcare providers should proactively identify and assist parents in managing sleep issues in children with DS.
Abstract

Keywords:
Down syndromeparent-child relationshipquality of lifesleep problem

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