Integrated Model for Patient-Centered Advanced Liver Disease Care
Aanand D Naik1, Jennifer Arney2, Jack A Clark3
1VA HSR&D Center for Innovations in Quality, Effectiveness, and Safety, Michael E. DeBakey VA Medical Center, Houston, Texas; Department of Medicine, Health Services Research, Baylor College of Medicine, Houston, Texas.
Patients with advanced liver disease (AdvLD) need better access to supportive and palliative care. Integrating this care early can improve patient-centered treatment aligned with individual priorities.
Area of Science:
- Hepatology
- Palliative Care
- Chronic Illness Management
Background:
- Advanced liver disease (AdvLD) is a common, high-risk condition with significant morbidity and mortality.
- Current treatments for AdvLD are effective, yet access to evidence-based supportive and palliative care remains insufficient.
- Existing chronic illness models show promise for integrating palliative care with curative treatments but face knowledge gaps.
Purpose of the Study:
- To review evidence gaps hindering the development of an integrated care model for AdvLD.
- To describe a conceptual framework for a patient-centered approach to integrated care in AdvLD.
- To identify key elements for improving integrated supportive and palliative care for AdvLD patients.
Main Methods:
- Literature review of evidence gaps in integrated care for AdvLD.
- Development of a conceptual framework for patient-centered integrated care.
- Analysis of elements required for collaborative care planning.
Main Results:
- Identified significant knowledge gaps in the integration of supportive and palliative care for AdvLD.
- Proposed a conceptual framework emphasizing patient priorities and collaborative decision-making.
- Highlighted the need for a multidisciplinary approach involving clinicians, patients, and caregivers.
Conclusions:
- An integrated care model is crucial for optimizing outcomes in advanced liver disease.
- Addressing identified evidence gaps is necessary for implementing effective patient-centered care.
- Collaborative efforts are essential to align treatments with patient values and improve quality of life in AdvLD.
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