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Methods for Image-based Surveys of Benthic Macroinvertebrates and Their Habitat Exemplified by the Drop Camera Survey for the Atlantic Sea Scallop
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Survey of U.S. adults with spina bifida

Christopher P Morley1, Sara Struwe2, Morgan A Pratte3

  • 1Department of Public Health & Preventive Medicine, Upstate Medical University, 750 E Adams St, Syracuse, NY, USA; Department of Family Medicine, Upstate Medical University, Syracuse, NY, USA; Department of Psychiatry & Behavioral Sciences, Upstate Medical University, Syracuse, NY, USA.

Disability and Health Journal
|August 11, 2019
PubMed

Insights

Adults with Spina Bifida (SB) experience significant skin breakdown and pain, with mobility issues being key predictors. Urinary tract infections (UTIs) are also common, but their predictors require further study.

Area of Science:

  • Neurology
  • Public Health
  • Rehabilitation Medicine

Background:

  • Spina Bifida (SB) is a prevalent birth defect in the US, causing lifelong disability.
  • Approximately 3.5 per 10,000 live births are affected by Spina Bifida.

Purpose of the Study:

  • To identify complications in adults with Spina Bifida, focusing on skin breakdown, pain, and urinary tract infections (UTIs).
  • To investigate socio-demographic factors associated with these Spina Bifida complications.

Main Methods:

  • An online, exploratory cross-sectional study was conducted.
  • A national convenience sample of US adults with Spina Bifida participated.

Main Results:

  • 43.1% reported skin breakdown, predicted by assistive device use and wheelchair use.
  • 46.9% reported pain; single status and higher education were protective, while assistive device use increased likelihood.
  • 32.7% reported UTIs, with no significant socio-demographic predictors identified.

Conclusions:

  • Adults with Spina Bifida face numerous complications that may be under-monitored.
  • Predictors for Spina Bifida-related complications warrant additional investigation to improve patient outcomes.
Abstract

Keywords:
Cross-sectionalDisabilityEpidemiologySpina bifidaSurveys

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