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The French Health Data Hub and the German Medical Informatics Initiatives: Two National Projects to Promote Data
Marc Cuggia1, Stéphanie Combes2
1INSERM, UMR 1099, Rennes, France and Université de Rennes 1, LTSI, Rennes, France.
Yearbook of Medical Informatics
|August 17, 2019
Summary
The French Health Data Hub (HDH) and German Medical Informatics Initiatives (MII) aim to advance health data utilization. While both projects share objectives, they differ in approach, with HDH using a top-down strategy and MII employing a bottom-up model through consortia.
Area of Science:
- Health Informatics
- Big Data in Healthcare
- European Health Initiatives
Background:
- Rapid growth in health data volume and diversity presents opportunities and challenges.
- Adequate computational infrastructure and secure data sharing are critical for health data utilization.
- Two major European initiatives, the French Health Data Hub (HDH) and German Medical Informatics Initiatives (MII), have been launched to address these needs.
Purpose of the Study:
- To compare the French Health Data Hub (HDH) initiative with the German Medical Informatics Initiatives (MII).
- To analyze these projects based on global approach, use cases, governance, technical aspects, and data privacy.
Main Methods:
- Comparative analysis of two national health data projects.
- Evaluation criteria included: global approach and ambitions, use cases, governance and organization, technical aspects and interoperability, and data privacy access/governance.
Main Results:
- Both HDH and MII share common objectives for health data advancement.
- The French HDH employs a top-down approach, focusing on a shared computational infrastructure.
- The German MII utilizes a bottom-up strategy, organized around four consortia of academic hospitals, universities, and private partners.
Conclusions:
- The French and German projects have distinct methodologies but aligned goals.
- Collaboration between HDH and MII could yield mutual benefits.
- Extended cooperation across European Union initiatives is recommended to strengthen efforts in this strategic area.
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