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ABIDE Delphi study: topics to discuss in diagnostic consultations in memory clinics
Agnetha D Fruijtier1,2, Leonie N C Visser3,4, Ingrid S van Maurik3,5
1Department of Neurology, Alzheimer Center Amsterdam, Amsterdam Neuroscience, Vrije Universiteit Amsterdam, Amsterdam UMC, Boelelaan 1118, 1081 HZ, Amsterdam, The Netherlands. a.fruijtier@amsterdamumc.nl.
Alzheimer'S Research & Therapy
|September 2, 2019
Summary
Patients and caregivers want more information during memory clinic consultations. A consensus study identified 17 key topics for discussion, improving communication for dementia diagnosis.
Area of Science:
- Neurology
- Geriatrics
- Patient Communication
Background:
- Information delivery in memory clinics varies significantly.
- Patients and caregivers desire more comprehensive information.
- A gap exists in understanding patient/caregiver priorities versus professional opinions on informational needs.
Purpose of the Study:
- To identify a consensus list of topics for discussion between healthcare professionals, patients, and caregivers in memory clinics.
- To determine the optimal timing for discussing these topics during the diagnostic process.
Main Methods:
- A three-round Delphi consensus study involving 80 professionals, 66 patients, and 76 caregivers.
- Participants rated the importance of 44 informative topics via online questionnaires.
- Consensus was defined as ≥75% agreement on a 7-point Likert scale.
Main Results:
- Consensus was reached on 17 core topics across four categories: diagnostic testing, results, diagnosis, and practical implications.
- Significant differences emerged regarding the perceived importance of discussing dementia risk and the distinction between Alzheimer's disease and dementia, with patients/caregivers rating these higher.
- Optimal discussion times were identified for all consensus topics.
Conclusions:
- A core list of 17 agreed-upon topics for memory clinic consultations has been established.
- This list can enhance communication and empower patients and caregivers during the diagnostic journey.
- Addressing informational needs improves the clinician-patient dynamic in memory care settings.
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