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Published on: June 2, 2014
Development of the TBI-QOL Headache Pain Item Bank and Short Form
David S Tulsky1, Callie E Tyner, Aaron J Boulton
1Center for Health Assessment Research and Translation, University of Delaware, Newark, DE (Drs Tulsky, Tyner, and Boulton and Ms Kisala); Departments of Physical Therapy and Psychological & Brain Sciences, University of Delaware, Newark, DE (Dr Tulsky); Department of Physical Medicine and Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, Illinois (Drs Heinemann and Roth); Shirley Ryan AbilityLab, Chicago, Illinois (Drs Heinemann and Roth); and Department of Physical Medicine & Rehabilitation, University of Michigan Medical School, Ann Arbor (Dr Carlozzi).
Objective:
To develop, calibrate, and evaluate the test-retest reliability of a new patient-reported outcome measure of headache pain relevant for individuals with traumatic brain injury (TBI).
Setting:
Six TBI Model Systems rehabilitation centers in the United States.
Participants:
Adults with medically confirmed documentation of TBI.
Design:
Cross-sectional calibration field testing and test-retest reliability analyses.
Main Measures:
Traumatic Brain Injury-Quality of Life Headache Pain item bank.
Results:
Thirteen headache pain items were calibrated as a unidimensional measure using data from 590 participants. The new measure was reliable (α = .98; item-total correlation range: 0.71-0.91). Item parameter estimates were estimated using Samejima's Graded Response Model and a 10-item calibrated short form was created. Simulation testing confirmed that both the computer-adaptive test and the short-form administrations were equivalent to the full item bank. One- to-2-week test-retest reliability of the computer-adaptive test was high (Pearson r and intraclass correlation coefficients = 0.81). Approximately two-thirds of the sample reported at least 1 headache symptom.
Conclusion:
The Traumatic Brain Injury-Quality of Life Headache Pain item bank and short form provide researchers and clinicians with reliable measures of the subjective experience of headache symptoms for individuals with a history of TBI.
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