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Related Experiment Video

Updated: Jan 19, 2026

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The Norwegian Twin Registry.

Thomas Nilsen1, Ingunn Brandt1, Jennifer R Harris2

  • 1Department of Health Studies, Division for Health Data and Digitalization, The Norwegian Institute of Public Health, Oslo, Norway.

Twin Research and Human Genetics : the Official Journal of the International Society for Twin Studies
|September 11, 2019
PubMed
Summary

The Norwegian Twin Registry (NTR) offers valuable twin data for health and wellbeing research. Linking NTR data with national registries enhances research potential.

Keywords:
Health registriesNTRNorwayNorwegian Twin Registrytwins

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Area of Science:

  • Genetics and Epidemiology
  • Public Health Research Resources

Background:

  • The Norwegian Twin Registry (NTR) is a consent-based resource merging twin data from various physical and mental health studies.
  • Existing NTR data is curated for secondary research, maximizing its utility.

Purpose of the Study:

  • To describe the current sample and data collections within the Norwegian Twin Registry.
  • To outline data access procedures for researchers.
  • To present an overview of national registries available for linkage with NTR data.

Main Methods:

  • Compilation of existing twin panels into a unified registry.
  • Data curation for secondary research applications.
  • Identification and description of nationwide health and socioeconomic registries for potential linkage.

Main Results:

  • The NTR comprises merged twin data panels for diverse research areas.
  • Opportunities exist to enhance NTR data through linkage with comprehensive national registries.
  • Detailed information on data access and linked registry potential is provided.

Conclusions:

  • The Norwegian Twin Registry serves as a valuable, consent-based research resource.
  • Record linkage with national registries significantly expands the research potential of twin data.
  • This article facilitates access to and utilization of the NTR for scientific inquiry.