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Understanding Care Navigation by Older Adults With Multimorbidity: Mixed-Methods Study Using Social Network and
Jolien Vos1, Kathrin Gerling2, Conor Linehan3
1UCL Interaction Centre, University College London, London, United Kingdom.
Older adults with multiple long-term conditions (LTCs) often manage complex care networks, with patient proactivity being key to successful navigation. Technology should support this coordination to ensure equitable care for all.
Area of Science:
- Gerontology
- Health Informatics
- Sociology of Health and Illness
Background:
- Healthcare systems are designed for single acute conditions, posing challenges for older adults with multiple long-term conditions (LTCs).
- Navigating complex health and social care systems negatively impacts the well-being and quality of life for individuals with multiple LTCs.
Purpose of the Study:
- To understand how older adults with multiple LTCs currently engage with and navigate their care networks.
- To inform the design of technology assisting individuals with LTCs in navigating health and social care systems.
Main Methods:
- A mixed-methods study involving 62 participants aged 55+ with at least two LTCs in England.
- Social network analysis questionnaires and semi-structured interviews with a subsample of participants.
Main Results:
- Personal care networks are complex and individualized, with patients primarily responsible for managing and connecting different care services.
- Patient proactivity, assertiveness, and determination significantly influence navigation experience satisfaction.
- Effective communication and interaction between care system components enhance navigation experiences.
Conclusions:
- Technology should support patients in managing complex care systems by integrating multiple conditions and facilitating stakeholder communication.
- Patient determination and organizational skills are crucial for quality care, highlighting the need for technological support in these areas.
- Technological solutions must offer flexibility and fulfill coordination functions to ensure equitable care delivery for older adults with multiple LTCs.
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