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Evaluating empowerment in genetic counseling using patient-reported outcomes
Jeanette Yuen1, Suat Y Lee1, Eliza Courtney1
1Cancer Genetics Service, Division of Medical Oncology, National Cancer Centre Singapore, Singapore, Singapore.
Clinical Genetics
|October 2, 2019
Summary
Cancer genetic counseling significantly improved patient empowerment, particularly cognitive control. However, emotional control aspects like reducing negative emotions and hopelessness require further attention in services.
Area of Science:
- Genetics
- Psychology
- Healthcare Services Research
Background:
- Patient-reported outcomes are crucial for evaluating and enhancing cancer genetics services (CGS).
- Limited data exists on patient empowerment following genetic counseling in Singapore.
Purpose of the Study:
- To measure empowerment improvement after genetic counseling in Singapore using a culturally adapted scale.
- To identify factors associated with changes in patient empowerment.
Main Methods:
- Administered the culturally adapted Genetic Counseling Outcome Scale (GCOS-24) to 155 patients pre- and post-counseling/testing.
- Utilized Rasch analysis to refine the scale into cognitive control (CC) and emotional control (EC) domains.
- Employed multiple regression to analyze factors associated with changes in CC and EC scores.
Main Results:
- Both cognitive control and emotional control scores significantly improved post-counseling and testing.
- All cognitive control items showed increases, indicating enhanced understanding and self-efficacy.
- Emotional control aspects related to alleviating negative emotions and hopelessness did not show significant improvement.
Conclusions:
- Cancer genetic counseling effectively enhances patient empowerment, particularly cognitive aspects.
- There is a need to integrate strategies to foster hope and manage negative emotions within genetic counseling.
- Further research should focus on improving the emotional support components of cancer genetic services.
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