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Navigating power dynamics in engaging communities in end-of-life issues - Lessons learned from developing
Max Kleijberg1, Beth Maina Ahlberg2, Alastair Macdonald3
1Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Death Studies
|October 13, 2019
Summary
Studio DöBra is an arts initiative fostering community engagement in end-of-life discussions and creating intergenerational spaces. It addresses challenges in developing community programs for end-of-life care.
Area of Science:
- Community Health
- Gerontology
- Arts-Based Research
Background:
- Swedish society faces challenges with age-segregation.
- Limited community engagement exists regarding end-of-life issues.
Purpose of the Study:
- To develop Studio DöBra, a community-based intergenerational arts initiative.
- To support community engagement in end-of-life issues.
- To create intergenerational meeting places.
Main Methods:
- Formed a project group with community organization representatives and the first author.
- Analyzed exploratory interviews with professionals from similar initiatives.
- Utilized data from the Studio DöBra development process.
Main Results:
- Identified challenges in developing community engagement initiatives for end-of-life issues.
- Explored power dynamics within project development.
- Gathered insights from similar intergenerational arts initiatives.
Conclusions:
- The development of Studio DöBra highlights key challenges in community engagement for end-of-life topics.
- Findings can inform the creation of similar intergenerational initiatives.
- Addressing power dynamics is crucial for successful community program development.
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