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Developmentally appropriate supported self-management for children and young people with chronic conditions: A

Nicole Saxby1, Karen Ford2, Sean Beggs3

  • 1Flinders Human Behaviour and Health Research Unit, Flinders University, Adelaide, Australia; Department of Women's and Children's Services, Royal Hobart Hospital, Hobart, Australia.

Patient Education and Counseling
|October 16, 2019
PubMed

Insights

This study established consensus definitions and recommendations for pediatric chronic condition self-management. The

Area of Science:

  • Pediatric Healthcare
  • Chronic Disease Management
  • Self-Management Support

Background:

  • Children and young people with chronic conditions require tailored self-management strategies.
  • Existing self-management guidance lacks consensus, particularly for pediatric populations.
  • Effective self-management support is crucial for improving health outcomes in youth.

Purpose of the Study:

  • To develop a consensus-based list of definitions, recommendations, and endpoints for self-management in children and young people (0-20 years) with chronic conditions.
  • To provide clinicians with evidence-based guidance for supporting pediatric self-management.
  • To establish a standardized framework for pediatric self-management.

Main Methods:

  • A Delphi technique involving three survey rounds with clinical academics was employed.
  • Expert consensus was achieved through iterative feedback and a 7-point Likert scale agreement rating (>70% consensus).
  • Statements were refined based on expert panel feedback and peer-reviewed literature.

Main Results:

  • Sixteen clinical academics participated, with high completion rates across survey rounds.
  • Consensus was reached on 90 out of 101 statements, categorized into five developmentally appropriate groups.
  • Key self-management domains identified include knowledge, involvement, symptom monitoring, transition, impact, lifestyle, and support, with distinct themes of responsibility and autonomy.

Conclusions:

  • This research provides a consensus-driven list for pediatric self-management support.
  • The 'Partners in Health: Self-Management Consensus List for Children and Young People' offers practical guidance for clinicians.
  • Standardized self-management approaches can enhance care for children with chronic conditions.
Abstract

Keywords:
AdolescenceAdolescentsChildrenChronic conditionChronic diseaseClinicalEducationSelf-managementSelf-management support

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