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Parents experiences of feeding their extremely preterm children during the first 2-3 years - A qualitative study

Anna Grundvig Nylund1,2, Margareta Gonzalez Lindh1,3,4, Fredrik Ahlsson5,6

  • 1Department of Neuroscience, Speech and Language Pathology, Uppsala University, Uppsala, Sweden.

Acta Paediatrica (Oslo, Norway : 1992)
|October 18, 2019
PubMed

Insights

Parents of extremely preterm infants faced feeding challenges and frustration during the first three years. They desired more specialized support from healthcare staff and peers during and after neonatal intensive care unit stays.

Area of Science:

  • Neonatal care
  • Pediatric nutrition
  • Parental experiences

Background:

  • Extremely preterm infants often present unique feeding challenges.
  • Nutritional support is critical for the development and long-term health of preterm infants.

Purpose of the Study:

  • To explore parental experiences with feeding extremely preterm children during the first three years of life.
  • To identify specific feeding difficulties and support needs of parents.

Main Methods:

  • Qualitative study utilizing interviews with 12 parents of nine extremely preterm children.
  • Interviews conducted between May and September 2018.
  • Data analyzed using qualitative content analysis.

Main Results:

  • All parents reported difficulties and frustration with their child's feeding development.
  • Challenges varied, impacting parents' ability to receive tailored support.
  • Parents expressed a strong need for enhanced support from healthcare professionals and peer groups.

Conclusions:

  • Parental feeding experiences with extremely preterm children are consistently challenging.
  • There is a significant need for specialized, ongoing support for these families, extending beyond the neonatal intensive care unit stay.
Abstract

Keywords:
dysphagiaextremely preterm infantsfeeding difficultiesneonatal intensive care unitparental experiences

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