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The Oley Foundation and Consumer Support Groups.

Julie M Andolina1, Lisa Crosby Metzger1, Joan Bishop1

  • 1The Oley Foundation, Albany Medical Center, MC 28, 99 Delaware Avenue, Delmar, NY 12054, USA.

Gastroenterology Clinics of North America
|November 1, 2019
PubMed
Summary
This summary is machine-generated.

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Patients with intestinal failure (IF) needing home parenteral and/or enteral nutrition (HPEN) face complications and psychosocial challenges. Support groups like the Oley Foundation provide vital resources and community for those affected.

Area of Science:

  • Clinical Nutrition
  • Patient Support
  • Gastroenterology

Background:

  • Intestinal failure (IF) necessitates home parenteral and/or enteral nutrition (HPEN).
  • IF and HPEN are linked to medical complications like infection and intolerance.
  • Significant psychosocial challenges, including depression and isolation, impact patients.

Purpose of the Study:

  • To highlight the multifaceted challenges faced by patients with intestinal failure on HPEN.
  • To emphasize the role of support systems in managing these challenges.
  • To introduce the Oley Foundation as a key resource for HPEN consumers and caregivers.

Main Methods:

  • Literature review on IF and HPEN complications.
  • Analysis of psychosocial impacts on patients.
Keywords:
Enteral nutritionHENHPNHome nutrition supportIntestinal failureParenteral nutritionSupport groupsThe Oley Foundation

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  • Case study/description of the Oley Foundation's programs and resources.

    • Main Results:

    • Patients experience a range of physical and psychosocial issues.
    • Traditional support groups offer peer-to-peer interaction.
    • The Oley Foundation provides comprehensive support beyond traditional groups.

    Conclusions:

    • Addressing the complex needs of IF patients requires a holistic approach.
    • Support organizations are crucial for patient well-being and management.
    • The Oley Foundation serves as a model for comprehensive patient support in HPEN.