Women's perspective on life after total laryngectomy: a qualitative study

Area of Science:

• Oncology
• Otolaryngology
• Psychosocial Health

Background:

• Total laryngectomy presents significant physical and psychosocial challenges, altering communication, airway, swallowing, and appearance.
• Patient-centered care necessitates understanding the specific impacts of laryngectomy on diverse patient subgroups.
• This study focuses on the unique experiences of women post-total laryngectomy.

Purpose of the Study:

• To explore the daily life impacts of total laryngectomy on women.
• To identify specific rehabilitation needs for women following total laryngectomy.

Main Methods:

• In-depth, semi-structured interviews with eight women at least one year post-total laryngectomy.
• Participants had no recurrent disease.
• Thematic analysis guided by interpretative phenomenological analysis was used to analyze interview data.

Main Results:

• Three key themes emerged: disease/treatment as a turning point, re-establishing daily activities, and persistent vulnerability.
• Challenges included physical disabilities, dependency, stigma, altered appearance/voice, caregiving roles, and spousal relationships.
• Women-specific issues related to intimacy and appearance were highlighted.

Conclusions:

• Women face unique challenges in returning to work, caregiving, relationships, and social interactions due to stigma.
• Pre-treatment counseling and multidisciplinary rehabilitation are crucial for managing expectations and preparing for changes.
• Rehabilitation should include partners and offer psychosocial support tailored to women's needs.