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Updated: Jan 4, 2026

Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
Published on: July 19, 2019
Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis: A Qualitative Inquiry
Background:
A diagnosis of multiple sclerosis (MS) can lead to changes to a person's sense of self. The aim of this study was to investigate the subjective experience of identity change and subsequent adjustment to MS.
Methods:
Semistructured interviews were conducted with 16 people who reported having MS. Interviews were analyzed using thematic analysis.
Results:
In the early stages of disease progression, participants wanted to compartmentalize the disease. Over time, through reflected self-appraisals, brought about by increasing symptoms and changed relationships with others, the disease became a part of participants' self-identity.
Conclusions:
For people with MS, incorporating and accepting the disease as part of their self-identity can have positive implications for seeking and receiving support.
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