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Parents' experiences of an e-health intervention implemented in pediatric healthcare: a qualitative study

Ingrid Larsson1, Petra Svedberg2, Susann Arvidsson2

  • 1School of Health and Welfare, Halmstad University, PO Box 823, S-30118, Halmstad, Sweden. ingrid.larsson@hh.se.

BMC Health Services Research
|November 7, 2019
PubMed

Insights

The Sisom e-health solution enhances child participation in healthcare by centering communication on the child

Area of Science:

  • Pediatric Healthcare
  • Health Informatics
  • Patient Engagement

Background:

  • Child participation in healthcare is crucial for well-being and aligns with the UN Convention on the Rights of the Child.
  • Effective communication and inclusion of children in care decisions are influenced by healthcare professionals and parental support.
  • E-health solutions offer potential to overcome communication barriers between children and healthcare providers.

Purpose of the Study:

  • To explore parents' perspectives on the outcomes of the Sisom e-health solution for children during healthcare appointments.
  • To understand how the Sisom tool impacts children's engagement and communication in their own healthcare.
  • To identify facilitators and outcomes associated with using Sisom in pediatric care.

Main Methods:

  • Qualitative study employing constructivist grounded theory.
  • Data collected through interviews with 16 parents whose children used the Sisom e-health solution.
  • Analysis focused on understanding parents' experiences and perceptions of the tool's impact.

Main Results:

  • The Sisom tool facilitates enhanced child participation by shifting focus to the child's voice, making them the primary agent in their care.
  • Key facilitators for participation included engaging the child, voice-guarding, raising awareness, and preserving integrity.
  • Use of Sisom also initiated a process that helped children cope with their illness experience.

Conclusions:

  • Sisom effectively reorients healthcare communication towards the child's perspective, promoting their active involvement and human rights.
  • The e-health solution increases child participation by including them in dialogues with healthcare professionals.
  • Sisom supports children's rights by empowering them to voice their needs and views in healthcare settings.
Abstract

Keywords:
ChildrenE-health interventionGrounded theoryParentsParticipation

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