Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set
Joan Carney1, Rhona Fisher2, Marika Augutis3
1Rehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, MD USA.
Spinal Cord Series and Cases
|November 9, 2019
Summary
A new data set was developed to collect essential education information for children and youth with spinal cord injury/dysfunction (SCI/D). This tool aims to improve understanding of educational experiences for young individuals with SCI/D.
Area of Science:
- Rehabilitation Medicine
- Pediatric Education
- Disability Studies
Background:
- Spinal Cord Injury/Dysfunction (SCI/D) significantly impacts educational experiences for children and youth.
- Standardized data collection is crucial for understanding and addressing educational challenges in pediatric SCI/D.
Purpose of the Study:
- To develop the International Spinal Cord Injury/Dysfunction (SCI/D) Education Basic Data Set.
- To establish a minimal, highly relevant set of data for assessing educational experiences in pediatric SCI/D.
Main Methods:
- Utilized established guidelines for data set development.
- Conducted literature reviews and iterative modifications through expert consensus.
- Disseminated drafts for feedback among international experts and relevant organizations (ISCoS, ASIA).
Main Results:
- The International SCI/D Education Basic Data Set Version 1.0 was finalized, comprising 16 items across three domains: school setting/therapeutic services, school participation/academic success, and barriers/attitudes.
- Most variables were adapted from existing measures.
- The data set is designed for children and youth up to high school age.
Conclusions:
- The developed data set provides a standardized method for collecting key educational information for children and youth with SCI/D.
- Further validation of the data set is recommended to ensure its efficacy and reliability.
