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In Experimental Hand Transplantation, Whose Views About Outcomes Should Matter Most?
Andrea DiMartini1, Mary Amanda Dew2
1A professor of psychiatry, surgery, and clinical and translational science at the Thomas E. Starzl Transplantation Institute (STI) at the University of Pittsburgh Medical Center (UPMC) in Pennsylvania.
Patient-subjects have the right to withdraw from experimental treatments at any time. Clinician-researchers must respect this autonomy, even when data collection is a priority.
Area of Science:
- Clinical Research Ethics
- Patient Autonomy in Medicine
Background:
- Informed consent is a cornerstone of experimental medical procedures.
- Shared decision-making between patients and clinicians is crucial for ethical research participation.
Observation:
- Patient-subjects may experience regret or reconsider choices made during non-experimental treatments.
- This reconsideration of autonomous choices extends to those undergoing experimental therapies.
Findings:
- Patient-subjects should have the freedom to withdraw from experimental research protocols.
- Clinician-researchers must prioritize respecting the patient-subject's right to discontinue research participation.
Implications:
- Upholding patient autonomy strengthens ethical research practices.
- Respecting the right to withdraw is paramount, regardless of research data needs.
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