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Analyzing the value of an educational program for psoriasis patients: a prospective controlled pilot study
Corinna Bubak1, Marthe-Lisa Schaarschmidt1, Lisa Schöben1
1Department of Dermatology, University Medical Centre Mannheim, Heidelberg University, Theodor-Kutzer-Ufer 1-3, 68135, Mannheim, Germany.
BMC Public Health
|November 21, 2019
Summary
An educational program significantly improved psoriasis patients' knowledge and self-expertise. While short-term quality of life and adherence were unaffected, the program showed benefits for specific age and disease duration groups.
Area of Science:
- Dermatology
- Medical Education
- Patient Empowerment
Background:
- Psoriasis is a chronic inflammatory skin condition impacting quality of life.
- Severe psoriasis increases risks for cardiovascular, metabolic, and immune-mediated disorders.
- Inadequate patient information contributes to suboptimal treatment adherence and outcomes.
Purpose of the Study:
- To evaluate the impact of an educational program on psoriasis patients' disease knowledge and self-expertise.
- To assess program effects based on patient age and disease duration.
- To investigate the program's influence on quality of life and therapy adherence.
Main Methods:
- Psoriasis patients were assigned to an educational program or a control group.
- Knowledge, self-expertise, therapy adherence, and satisfaction were assessed via questionnaires.
- Dermatology Life Quality Index (DLQI) measured quality of life.
- Statistical analyses included t-tests and Mann-Whitney tests for continuous data, and Fisher's exact test for categorical data.
Main Results:
- Educated patients (n=24) demonstrated significant increases in disease knowledge and self-expertise, alongside general health improvements.
- No significant short-term improvements were observed in quality of life or therapy adherence.
- Older patients (≥50 years) and those with longer disease duration showed improved emotional well-being.
- Younger patients (<50 years) experienced enhanced self-expertise regarding their psoriasis.
Conclusions:
- Participation in an educational program enhances psoriasis patients' knowledge and self-expertise.
- Educational interventions may positively influence the long-term management of psoriasis.
- Further long-term research is necessary to confirm the effects on patient outcomes, quality of life, and adherence.
Keywords:
Adherence knowledge about diseaseEducational programPatient educationPsoriasisSelf-expertise about disease
