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Published on: March 6, 2018
No time for reflection: Patient experiences with treatment-related decision-making in advanced prostate cancer
Mette Margrethe Løwe Netsey-Afedo1,2, Jette Ammentorp1, Palle Jørn Sloth Osther2,3
1Department of Regional Health Research, University of Southern Denmark & Lillebaelt Hospital, Vejle, Denmark.
Background:
The rationale of the study was the predominant understanding that patient involvement in treatment-related decision-making is essential and that communication with cancer patients can affect their quality of life, satisfaction with care, and psychosocial and medical outcomes positively.
Aim:
This study explored how patients with advanced prostate cancer experience the communication with health professionals and their experiences of how and by whom treatment-related decisions were made.
Methods:
A phenomenological-hermeneutic research design was applied, and data were collected using qualitative interviews supplemented with participant observations in a urological outpatient clinic at a regional hospital in Denmark. Thirteen patients participated. Data were analysed using Ricoeur's theory of interpretation.
Findings:
The patients experienced the course as being routine and that decisions related to treatment were made in advance. Three themes were identified: (1) Fast track diagnosing and treatment, (2) Off course I should have this treatment, and (3) They don't ask about existential issues.
Conclusion:
The study concluded that patients experienced communication primarily revolved around disease- and treatment-related issues and that it was characterised as efficient and straightforward, but insufficient. The patients experienced that the doctors made treatment-related decisions without involving them.
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