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Investigation of garbage code deaths to improve the quality of cause-of-death in Brazil: results from a pilot study
Raquel Barbosa de Lima1, Ashley Frederes2, Maria Fatima Marinho3
1Coordenação Geral de Informações e Análise Epidemiológica, Departamento de Análise de Saúde e Vigilância de Doenças Não Transmissíveis, Secretaria de Vigilância em Saúde, Ministério da Saúde. Brasília (DF) - Brazil.
Insights
A pilot study in Brazil successfully investigated garbage codes (GC) in cause of death (CoD) data, improving data reliability. This strategy enhanced CoD certification for over 92% of investigated deaths.
Area of Science:
- Public Health
- Mortality Statistics
- Epidemiology
Background:
- Reliable cause-of-death (CoD) statistics are crucial for understanding population health trends.
- Brazil's Mortality Information System faces challenges with 'garbage codes' (GCs) that are not valid underlying causes of death.
- The Ministry of Health (MoH) aims to reduce the proportion of GCs in mortality data.
Purpose of the Study:
- To test a comprehensive strategy for investigating garbage code (GC) deaths in Brazil.
- To improve the accuracy of cause of death (CoD) certification by addressing GCs.
Main Methods:
- A pilot study was conducted in seven Brazilian cities involving municipal healthcare workers.
- Information on terminal diseases was collected from hospital records, autopsies, family health teams, and home investigations.
- Fieldwork was coordinated federally in partnership with state and municipal teams.
Main Results:
- Physicians analyzed data from 1,242 selected GC deaths.
- The underlying cause of death was successfully changed to a usable ICD-10 code in 1,055 cases (92.6%).
Conclusions:
- Health teams demonstrated significant capacity during the pilot implementation.
- The GC investigation protocol was refined and scaled up to 60 cities in 2017 based on pilot results.
Introduction:
Reliable cause-of-death statistics are an important source of information on trends and differentials in population health. In Brazil, the Mortality Information System is responsible for compiling cause of death (CoD) data. Despite the success in reducing R-codes ill-defined causes of death, other garbage codes (GC), classified as causes that cannot be the underlying CoD, according to the Global Burden of Disease study, remain a challenge. The Ministry of Health (MoH) aims to decrease the proportion of all GCs, and a pilot study tested a comprehensive strategy to investigate GC deaths that occurred in 2015.
Methods:
The research was conducted in seven Brazilian cities during five months in 2016: two rural cities, one metropolitan area, and four capitals. For all GCs selected, municipal healthcare workers collected information about the terminal disease from hospital records, autopsies, family health teams, and home investigation. The fieldwork was coordinated at Federal level in partnership with State and municipal teams.
Results:
Out of 1,242 deaths selected, physicians analyzed the information collected and certified the CoD in 1,055 deaths, resulting in 92.6% of cases having their underlying cause changed to a usable ICD-10 code.
Discussion:
It is noteworthy the capacity the health teams in the seven cities showed during the implementation of the pilot.
Conclusion:
After results analysis, the GC investigation protocol was modified, and the implementation scaled up to 60 cities in 2017.
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