Transition to adult care in sleep medicine

Mimi Lu1, Brendon J Yee2, Dominic A Fitzgerald1

  • 1Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia.

Insights

Advancements in medical technology are increasing the number of children with complex needs transitioning to adulthood. This transition requires coordinated sleep medicine management and addresses challenges like independence, behavior, and resource limitations.

Area of Science:

  • Pediatrics
  • Sleep Medicine
  • Healthcare Transition

Background:

  • Increasing number of children with chronic conditions and complex care needs are transitioning to adulthood.
  • Medical advancements, including home non-invasive ventilation (NIV) and novel therapies, facilitate this transition.
  • Sleep medicine is a critical component in managing these young individuals.

Purpose of the Study:

  • To highlight the challenges in transitioning pediatric sleep patients to adult care.
  • To emphasize the need for early, coordinated transition approaches.
  • To advocate for increased awareness and research in this area.

Main Methods:

  • The study reviews the complexities and challenges associated with transitioning pediatric patients with sleep disorders.
  • It identifies specific issues based on underlying conditions, such as neuromuscular disorders and syndromes.
  • It discusses resource limitations within adult settings.

Main Results:

  • Transitioning pediatric sleep patients presents unique challenges, including patient independence vs. self-care decline (neuromuscular patients).
  • Behavioral issues in syndrome-related conditions and funding for equipment, care, and multidisciplinary teams are significant hurdles.
  • Current adult settings may be resource-limited for these complex cases.

Conclusions:

  • A coordinated and early transition approach, guided by core principles, is essential for technology-supported youth.
  • Ongoing advocacy is necessary to address the growing trend of transitioning complex pediatric patients.
  • Further research is crucial to evaluate and improve the transition process for various sleep conditions.

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