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How pain management for children with cerebral palsy in South African schools complies with up-to-date knowledge
Ensa Johnson1, Stefan Nilsson2,3, Margareta Adolfsson1,4,5
1Centre for Augmentative and Alternative Communication, Faculty of Humanities, University of Pretoria, Pretoria, South Africa.
Insights
Pain management for children with cerebral palsy (CP) in South African schools often lacks alignment with current evidence-based practices. This study highlights a gap between clinical practice and scientific knowledge, suggesting a need for updated interventions and improved access to specialized care.
Area of Science:
- Pediatric Pain Management
- Cerebral Palsy Interventions
- Evidence-Based Practice in Schools
Background:
- Musculoskeletal pain in children with cerebral palsy (CP) significantly impacts their learning.
- School staff may lack updated knowledge on effective pain management strategies for CP.
- Existing interventions may not align with current scientific evidence.
Purpose of the Study:
- To assess pain management interventions for children with CP in South African schools against international evidence-based knowledge.
- To identify knowledge gaps for professionals and decision-makers.
- To support updates in pain management protocols for children with CP.
Main Methods:
- Conducted five focus groups with staff at special needs schools in South Africa.
- Utilized manifest and latent content analyses of professional statements.
- Compared reported interventions with established levels of evidence.
Main Results:
- Interventions primarily focused on motor functions managed by physiotherapists and occupational therapists.
- Limited access to orthopaedic expertise and long waiting times were reported.
- Medication for spasticity management was not consistently offered.
Conclusions:
- A significant discrepancy exists between published evidence and clinical practice for CP pain management in South African schools.
- Recommendations include enhanced early intervention and surveillance for hip issues.
- Improved orthopaedic management is crucial to prevent deformities and suffering.
Background:
Pain in children with cerebral palsy (CP) has its sources in musculoskeletal problems that can influence learning in a school setting. Best pain management is essential for these children, but school staff may not keep up to date with the latest developments and interventions. Therefore, staff's perceptions of beneficial strategies may not comply with contemporary scientific knowledge about effective evidence-based interventions.
Objectives:
This study investigated how pain management intervention for children with CP in South African schools complied with international scientific knowledge about evidence-based interventions. The intention was to provide support for an update of knowledge on both individual level (i.e. professionals) and system level (i.e. decision makers).
Method:
Five focus groups were conducted with staff members at five schools for children with special educational needs in South Africa. Manifest and latent content analyses of professional statements identified interventions reported as beneficial and related them to higher and lower levels of intervention evidence as reported at the time of data collection.
Results:
Most treatment strategies concerned motor functioning that fell within the framework of physiotherapists and occupational therapists. Access to orthopaedic expertise was limited, waiting times were long and medication for spasticity treatment was not offered.
Conclusion:
A discrepancy between published evidence and clinical practice for pain management in children with CP in South African school settings was noted. Suggestions for improved early intervention to identify children's hips at risk through surveillance programmes; and orthopaedic management are proposed to prevent deformities and unnecessary suffering in South African children with CP.
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