How pain management for children with cerebral palsy in South African schools complies with up-to-date knowledge

Ensa Johnson1, Stefan Nilsson2,3, Margareta Adolfsson1,4,5

  • 1Centre for Augmentative and Alternative Communication, Faculty of Humanities, University of Pretoria, Pretoria, South Africa.

Insights

Pain management for children with cerebral palsy (CP) in South African schools often lacks alignment with current evidence-based practices. This study highlights a gap between clinical practice and scientific knowledge, suggesting a need for updated interventions and improved access to specialized care.

Area of Science:

  • Pediatric Pain Management
  • Cerebral Palsy Interventions
  • Evidence-Based Practice in Schools

Background:

  • Musculoskeletal pain in children with cerebral palsy (CP) significantly impacts their learning.
  • School staff may lack updated knowledge on effective pain management strategies for CP.
  • Existing interventions may not align with current scientific evidence.

Purpose of the Study:

  • To assess pain management interventions for children with CP in South African schools against international evidence-based knowledge.
  • To identify knowledge gaps for professionals and decision-makers.
  • To support updates in pain management protocols for children with CP.

Main Methods:

  • Conducted five focus groups with staff at special needs schools in South Africa.
  • Utilized manifest and latent content analyses of professional statements.
  • Compared reported interventions with established levels of evidence.

Main Results:

  • Interventions primarily focused on motor functions managed by physiotherapists and occupational therapists.
  • Limited access to orthopaedic expertise and long waiting times were reported.
  • Medication for spasticity management was not consistently offered.

Conclusions:

  • A significant discrepancy exists between published evidence and clinical practice for CP pain management in South African schools.
  • Recommendations include enhanced early intervention and surveillance for hip issues.
  • Improved orthopaedic management is crucial to prevent deformities and suffering.
Abstract