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Virtual Hand with Ambiguous Movement between the Self and Other Origin: Sense of Ownership and 'Other-Produced' Agency
Published on: October 28, 2020
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Open Access as a Revolution: Knowledge Alters Power
1e-Patient Dave, LLC, Nashua, NH, United States.
Journal of Medical Internet Research
|December 12, 2019
Summary
Patients are demanding access to their medical data, a movement that has grown over the past decade. Gaining access to electronic health records and open access information empowers patients, while withholding it disempowers them.
Area of Science:
- Medical Informatics
- Health Sociology
- Patient Advocacy
Background:
- The patient movement advocating for access to medical records, symbolized by "Gimme My Damn Data," emerged a decade ago.
- Significant technological and sociological shifts in medicine have occurred concurrently with this movement.
- The patient's right to access health information has gained prominence.
Purpose of the Study:
- To examine the evolution of the patient data access movement over the past ten years.
- To analyze the impact of open access information and electronic health records on patient empowerment.
- To highlight obstacles and opposition faced by the patient movement.
Main Methods:
- Qualitative analysis of the patient movement's trajectory.
- Review of technological advancements in medical data management.
- Sociological examination of patient empowerment through information access.
Main Results:
- The "Gimme My Damn Data" movement has gained momentum over the last decade.
- Access to electronic medical records and open access data are crucial for patient empowerment.
- Opposition and obstacles continue to challenge patient data access.
Conclusions:
- Knowledge is power; withholding patient data disempowers individuals.
- Ensuring open access to medical information is vital for the future of patient care.
- Continued advocacy is necessary to overcome barriers to patient data access.
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