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Published on: June 20, 2020
The aging of families with members with intellectual disabilities
Renata Balieiro Takebayashi1, Hugo Fernandes1, Maria Goreti da Silva da Cruz1
1Universidade Federal de São Paulo. São Paulo, São Paulo, Brazil.
Objective:
to understand the structure and dynamics of families in the late stage of the life cycle that have a member with intellectual disability.
Method:
qualitative research using the Calgary Family Assessment Model as methodological framework. The study had 38 participants, distributed into 10 families that had a member with intellectual disability and whose parents were elderly. The interviews were analyzed with content analysis technique.
Results:
the following analytical categories were evidenced: "living with intellectual disability", "communication as a strategy for encounter", "family isolation and the need for support" and "concerns about care in the future".
Conclusion:
families in the late life cycle who had a member with intellectual disability are arranged in a structure that overloads a single caregiver (mother), has little support network, uses communication as an instrument for understanding themselves and the other, besides having difficulties in projecting the future.
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