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International Consortium for Health Outcomes Measurement (ICHOM): Standardized Patient-Centered Outcomes Measurement
Daniel J P Burns1, Jason Arora2, Oluwakemi Okunade2
1Department of Thoracic and Cardiovascular Surgery, Cleveland Clinic, Cleveland, Ohio.
JACC. Heart Failure
|December 16, 2019
Summary
International standards for heart failure care are now available. A 17-item set of outcomes and risk-adjustment variables aims to improve global heart failure patient care and research comparability.
Area of Science:
- Cardiology
- Health Outcomes Research
- Clinical Informatics
Background:
- Existing heart failure registries lack international standards for clinical assessment and outcome measurement.
- This gap hinders international comparison of heart failure care quality and research.
- There is a need for standardized, patient-centered outcomes for global relevance.
Purpose of the Study:
- To establish international standards for clinical assessment and outcome measurement in heart failure.
- To facilitate international comparison and improve the quality of heart failure care.
- To develop a feasible and relevant dataset for global application.
Main Methods:
- Convened an international working group of heart failure experts, researchers, and patient representatives.
- Employed a Delphi process, patient focus groups, online surveys, and systematic literature reviews over 10 months.
- Conducted 7 international teleconferences to reach consensus.
Main Results:
- Established a 17-item set of outcomes and risk-adjustment variables for heart failure.
- The set addresses functional, psychosocial, burden of care, and survival domains.
- Utilizes clinician reports, administrative data, and validated patient-reported outcome tools (KCCQ, PHQ-2, PROMIS).
Conclusions:
- The developed dataset enables capture, comparison, and improvement of heart failure care globally.
- Standardized measures promote risk adjustment and benchmarking across providers and regions.
- The initiative focuses on feasibility and relevance for patients and clinicians worldwide.
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