Hidradenitis suppurativa on Facebook: thematic and content analyses of patient support group

Online support groups present a sheltered and partially anonymous zone where patients can unload that which disturbs and preoccupies them. In this qualitative study, we explored the use of a Facebook support group for Hidradenitis Suppurativa (HS) patients, and analyzed the contents of shared posts. By evaluating the post's themes, we aim to contribute a deeper understanding of HS patients' needs and possible ways of engaging them. We analyzed more than 730 posts and 8500 comments posted on the "Hidradenitis Suppurativa Israel'' Facebook group. Content analysis was performed, categorizing all posts into 20 topics, assembled into 5 main themes. The most popular theme among all posts was requests for treatment information. The most commented on theme was posts with emotional text, particularly pessimistic ones. Annual activity was analyzed by month, and peaks were found in some months. This article demonstrates that online social networks can lead to the identification of unmet requirements.