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Updated: Jan 1, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
A collaborative approach in dementia care to improve clinical effectiveness and priorities for research through audit
Julie Kinley1, Clare Ellis-Smith2, Michael Hurt3
1Formerly Nurse Consultant for Care Homes, Care Home Project Team, London.
Background:
To provide appropriate cost-effective care for an ageing population, realignment of care provision to conditions common in advanced age, notably, dementia and multi-morbidities is required. The use of outcome measures in practice may enable this.
Aim:
A collaborative baseline audit was undertaken to understand how best to implement outcome measures into services for people with dementia across clinical settings.
Methods:
An academic institution set up a 6-month collaborative baseline audit in 11 English sites. Measures comprised: symptoms/concerns (Integrated Palliative care Outcome Scale for Dementia); Phase of Illness; functional status (Australia-modified Karnofsky Performance Scale); and dementia severity (Functional Assessment Staging).
Findings:
Measures were completed at first assessment for 225 people with dementia across nine sites. Their completion promoted comprehensive assessments, but challenges also existed, including recording the prevalence/severity of non-physical symptoms by proxy.
Conclusions:
The joining together of clinical academic expertise enabled mobilisation of expert knowledge into and from clinical practice.
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