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Expectations of breast-conserving therapy: a qualitative study
Sarah Fuzesi1,2, Karima Becetti3, Anne F Klassen4
1Department of Surgery, Memorial Sloan Kettering Cancer Center, 1275 York Avenue, New York, NY, 10065, USA. sarah.fuzesi@gmail.com.
Patients undergoing breast-conserving therapy (BCT) often have limited understanding of the treatment process. This knowledge gap impacts their experience and quality of life, highlighting a need for improved preoperative education.
Area of Science:
- Oncology
- Patient Experience Research
- Qualitative Health Research
Background:
- Breast-conserving therapy (BCT) is a common treatment for early-stage breast cancer.
- Patient expectations of BCT are not well understood and influence treatment perception and quality of life.
- Understanding patient expectations is crucial for improving preoperative education and the overall patient journey.
Purpose of the Study:
- To qualitatively explore and describe patient expectations of breast-conserving therapy (BCT).
- To identify knowledge gaps in patient understanding of BCT.
- To inform enhanced preoperative patient education strategies.
Main Methods:
- Grounded theory approach used with a sample of 22 women with early-stage breast cancer.
- Semi-structured interviews conducted in person and via telephone.
- Data analyzed through line-by-line coding to identify emergent themes.
Main Results:
- Key themes identified: cancer care experience, recovery, appearance, and health-related quality of life (HR-QOL).
- Despite preoperative information, patients reported limited preoperative expectations due to a lack of process knowledge.
- Postoperative care and resources helped compensate for the initial lack of expectations.
Conclusions:
- Patients often have a limited understanding of BCT, indicating a significant knowledge gap.
- Trust, rather than complete understanding, often characterizes the patient's approach to cancer treatment.
- Findings underscore the need to enhance preoperative discussions to better prepare patients for BCT.
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