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Published on: April 4, 2018
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Values clarification and parental decision making about newborn genomic sequencing
Susana Peinado1, Ryan S Paquin1, Christine Rini2
1Center for Communication Science.
Summary
Adding a values clarification exercise to newborn genomic sequencing decision aids reduced regret and improved clarity, especially for those with lower health literacy. This supports better parental decision-making.
Area of Science:
- Genomic Medicine
- Decision Science
- Health Literacy
Background:
- Parental decision-making regarding newborn genomic sequencing is complex.
- Effective decision aids are crucial for informed choices.
- Health literacy can impact understanding and decision quality.
Purpose of the Study:
- To evaluate the impact of a values clarification exercise within a decision aid for newborn genomic sequencing.
- To assess effects on decision-making outcomes and intention to pursue sequencing.
- To examine if health literacy moderates the effectiveness of the values clarification exercise.
Main Methods:
- An online experiment randomly assigned 1,000 participants to a decision aid with or without a values clarification exercise.
- Participants were adults aged 18-44 involved in pregnancy planning.
- Decision-making outcomes and health literacy levels were measured.
Main Results:
- The values clarification exercise significantly reduced decision regret and increased clarity of personal values.
- Benefits were particularly pronounced for participants with lower health literacy regarding decisional conflict.
- No significant moderation effect of health literacy on decision regret was found.
Conclusions:
- Integrating values clarification into decision aids can enhance the parental experience for newborn genomic sequencing.
- This approach may particularly benefit individuals with lower health literacy.
- Improved decision-making processes can lead to more informed parental choices.
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