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Stigmatisation and resilience in inflammatory bowel disease
Marco Vincenzo Lenti1, Sara Cococcia1, Jihane Ghorayeb2
1First Department of Internal Medicine, San Matteo Hospital Foundation, University of Pavia, Pavia, Italy.
Internal and Emergency Medicine
|January 2, 2020
Summary
Inflammatory bowel disease (IBD) patients experience social stigma, often due to disease flares and surgery. Resilience, the ability to cope positively, is understudied in IBD but may be enhanced through interventions.
Area of Science:
- Gastroenterology
- Psychology
- Sociology
Background:
- Inflammatory bowel disease (IBD), encompassing Crohn's disease and ulcerative colitis, is a chronic immune-mediated condition causing severe gastrointestinal symptoms.
- These symptoms significantly impair patients' quality of life, impacting psychological, physical, sexual, and social functioning.
- Patients with IBD may experience social stigmatisation, a phenomenon where negative attributes lead to social separation.
Purpose of the Study:
- To review current knowledge on social stigmatisation in inflammatory bowel disease (IBD) patients.
- To explore the concept of resilience in the context of IBD.
- To highlight the potential for interventions to enhance resilience in IBD patients.
Main Methods:
- Literature review focusing on studies investigating stigmatisation and resilience in inflammatory bowel disease.
- Analysis of factors contributing to stigmatisation, such as disease flares and surgical complications.
- Examination of existing research on resilience in chronic conditions and its applicability to IBD.
Main Results:
- Social stigmatisation is a recognized issue for IBD patients, influenced by disease activity and treatment outcomes.
- Resilience research in IBD is limited compared to other chronic illnesses like cancer and mental health conditions.
- Disease flares and surgery-related concerns are key drivers of stigmatisation in the IBD population.
Conclusions:
- Understanding stigmatisation and resilience is crucial for improving the holistic care of inflammatory bowel disease patients.
- Further research into resilience in IBD is warranted, exploring its measurement and potential for enhancement.
- Interventions aimed at strengthening resilience could improve coping mechanisms and quality of life for individuals with IBD.
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