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Best practices for collecting repeated measures data using text messages.

Noa'a Shimoni1, Siripanth Nippita2, Paula M Castaño3

  • 1Department of Family Medicine, Rutgers New Jersey Medical School, 183 South Orange Avenue, E1562, Newark, NJ, 07103, USA. noaa.shimoni@rutgers.edu.

BMC Medical Research Methodology
|January 5, 2020
PubMed
Summary
This summary is machine-generated.

Collecting patient-reported outcomes via text messages offers real-time data capture. Careful planning of message content, data management, and participant engagement ensures complete and accurate datasets for clinical research.

Keywords:
Data collectionElectronic data captureMobile phoneResearch methodologyText messaging

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Area of Science:

  • Clinical Research Informatics
  • Digital Health
  • Patient-Reported Outcomes

Background:

  • Text messages offer real-time data capture advantages over traditional methods in research and clinical settings.
  • This review focuses on the practical aspects of setting up and managing projects for collecting patient-reported data via text messages.

Purpose of the Study:

  • To review experiences and literature on using text messages for patient-reported data collection in clinical trials.
  • To provide recommendations for successful implementation of text message-based data collection.

Main Methods:

  • Review of experience from six clinical trials involving over 2600 participants using text messages for data collection or information relay.
  • Literature review on text message utilization for repeated data collection.
  • Classification of recommendations based on common themes: message design, data submission, and device considerations.

Main Results:

  • Recommendations for designing short, simple text message prompts and response options.
  • Strategies for managing data, including response reminders, parameters for missing data, and data correction protocols.
  • Emphasis on ensuring participant ability to receive/respond to messages, addressing privacy, and planning for service interruptions.

Conclusions:

  • Meticulous planning and execution are crucial for achieving complete, timely, and accurate patient-reported data sets.
  • Effective use of text messaging platforms and thoughtful data management enhance research data quality.