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Understanding Community-based HIV/AIDS Service Organizations: An Invaluable Source of HPV-related Cancer Information
Lisa T Wigfall1,2, Patricia Goodson1, George B Cunningham3
1College of Education and Human Development, Department of Health and Kinesiology, Division of Health Education, Texas A&M University, College Station, Texas, USA.
Non-clinical HIV service providers actively seek and share health information for vulnerable populations, acting as key information hubs. Further research is needed to understand their knowledge and perspectives on shared health data.
Area of Science:
- Public Health
- Health Communication
- HIV/AIDS Research
Background:
- Non-clinical HIV service providers (NCHSPs) play a crucial role in supporting vulnerable populations, including people living with HIV (PLWH) and men who have sex with men (MSM).
- Understanding their function as information conduits is essential for effective health communication strategies.
- NCHSPs may act as surrogate seekers and health information mavens for the communities they serve.
Purpose of the Study:
- To describe non-clinical HIV service providers (NCHSPs) as surrogate seekers and health information mavens.
- To assess their engagement with health information related to HIV/AIDS, STDs, cancer, and HPV.
- To evaluate their confidence and trust in various health information sources.
Main Methods:
- A survey of 30 NCHSPs from community-based HIV/AIDS service organizations was conducted in May/June 2016.
- Participants completed an 118-item self-administered survey on HPV, cancer, and health communication.
- Data were analyzed using Stata/SE 14.1.
Main Results:
- Nearly all NCHSPs (97%) acted as surrogate seekers, actively searching for information on HIV/AIDS, STDs, and cancer.
- Most (60%) cancer information seekers also sought information on HPV.
- The Internet and healthcare providers were the most trusted information sources (97%), and NCHSPs reported high confidence (93%) in their ability to find health information.
- NCHSPs demonstrated significantly high health information mavenism scores (mean 17.4 ± 2.1, p < 0.001).
Conclusions:
- NCHSPs actively seek and disseminate health information to vulnerable populations.
- Their role as health information mavens is significant, but further research is needed.
- Understanding NCHSPs' knowledge and perspectives on shared health information is crucial for optimizing health outcomes in at-risk communities.
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