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ABC-tool reinvented: development of a disease-specific 'Assessment of Burden of Chronic Conditions (ABCC)-tool' for
Esther A Boudewijns1, Danny Claessens2, Onno C P van Schayck2
1Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht University, P.O. Box 616, 6200, MD, Maastricht, the Netherlands. esther.boudewijns@maastrichtuniversity.nl.
Insights
The Assessment of Burden of Chronic Conditions (ABCC)-tool integrates multiple chronic conditions like COPD, asthma, and diabetes, improving patient self-management and shared decision-making. This tool offers a comprehensive approach for multimorbidity care.
Area of Science:
- Multimorbidity research
- Patient-reported outcomes
- Digital health tools
Background:
- Existing patient-reported outcome tools often focus on single conditions, which is insufficient for multimorbidity.
- Multimorbidity is increasing, necessitating comprehensive assessment tools.
- Current tools may not adequately support shared decision-making or self-management.
Purpose of the Study:
- To adapt the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool.
- To include COPD, asthma, and diabetes mellitus type 2 (DM2) within the ABCC-tool.
- To develop a tool that facilitates shared decision-making and stimulates self-management.
Main Methods:
- Formulated requirements for the new tool.
- Developed questionnaires based on literature, guidelines, patient/provider interviews, and expert input.
- Determined cut-off points and treatment advice for practical recommendations.
Main Results:
- The ABCC-tool features a generic and disease-specific questionnaire, combinable into an individualized patient assessment.
- Results are visualized in a balloon chart.
- Each domain provides practical recommendations for patients and providers.
Conclusions:
- The ABCC-tool is expected to enhance patient-provider communication.
- It will aid in formulating personalized treatment and care plans with specific goals.
- The integrated approach makes the tool applicable to diverse disease combinations and clinical settings.
Background:
Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates self-management is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice.
Methods:
Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations.
Results:
The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations.
Conclusions:
The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.
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