Related Experiment Video
Updated: Dec 30, 2025
Therapeutic Evaluation of Fecal Microbiota Transplantation in an Interleukin 10-Deficient Mouse Model
Published on: April 6, 2022
Using a Mixed-method Approach to Develop a Transition Program for Young Adults With Inflammatory Bowel Disease
Michele H Maddux1,2, Megan Drovetta3, Rachel Hasenkamp2
1Division of Developmental and Behavioral Sciences.
Insights
Developing a needs-based transition program for pediatric inflammatory bowel disease (IBD) patients is crucial. This program addresses barriers and enhances self-advocacy and care continuity for young adults with IBD.
Area of Science:
- Gastroenterology
- Pediatric Health
- Transition of Care
Background:
- Pediatric inflammatory bowel disease (IBD) transition guidelines are often not implemented in standard care.
- A mixed-methods approach was used to develop a needs-based transition program for IBD patients.
Purpose of the Study:
- To identify barriers and essential components for a successful transition program for adolescents and young adults with IBD.
- To develop a comprehensive transition program addressing patient and provider needs.
Main Methods:
- Qualitative and quantitative data collection from 29 adolescents with IBD, 8 young adults, 14 pediatric gastroenterologists, and 58 adult gastroenterologists.
- Stakeholder input was gathered on transition barriers, patient competencies, and clinical intervention targets.
Main Results:
- Key barriers include adult gastroenterologist availability and expertise in childhood-onset IBD.
- Essential transition support includes self-advocacy, insurance education, and peer mentoring.
- Developed educational materials, a portable medical summary, a referral database, and a young adult clinic.
Conclusions:
- Involving stakeholders ensures patient-centered transition care.
- Collaboration between pediatric and adult providers facilitates seamless healthcare continuity.
- Further evaluation of the program's impact on self-management in adult care is warranted.
Background:
Although transition guidelines have been specified in pediatric inflammatory bowel disease (IBD), few IBD centers implement these into standard care. We describe a mixed qualitative and quantitative process of developing a needs-based transition program for adolescents and young adults with IBD.
Methods:
We enrolled 29 adolescents with IBD, 8 young adults with IBD in adult care, 14 pediatric gastroenterologists, and 58 adult gastroenterologists to provide input into barriers to successful transition, essential patient competencies, and key targets of clinical intervention.
Results:
The availability and expertise of adult gastroenterologists in childhood-onset IBD were identified by pediatric providers as primary barriers to health care transfer. A medical summary containing pertinent health information was identified by adult providers as instrumental to assume patient care post transfer. Young adults with IBD identified self-advocacy, education on insurance basics, and peer mentoring as essential targets of transition support and preparation in pediatric care. Findings were used to develop educational materials, a portable medical summary, a referral database of adult gastroenterologists, and a young adult clinic geared towards transition planning.
Conclusion:
Involving key patient and provider stakeholders in the development of a transition program is aimed at ensuring that the individual needs of patients and their families are met. Collaboration between pediatric and adult providers is also intended to facilitate a seamless continuum from pediatric to adult health care services. Efforts to evaluate the impact of such programming on self-management in adult care are needed.
More Related Videos
09:44Evaluating Therapeutic Interventions in the SHIP-deficient Mouse Model of Crohn Disease-like Ileitis and Fibrosis
Published on: October 14, 2025
06:57Development of an Antigen-driven Colitis Model to Study Presentation of Antigens by Antigen Presenting Cells to T Cells
Published on: September 18, 2016
Related Concept Videos
01:30Inflammatory Bowel Disease III: Diagnostic Studies and Management I-Nutritional Therapy
Diagnostic studies
A colonoscopy is the definitive screening test, distinguishing ulcerative colitis from other colon diseases with similar symptoms. During a colonoscopy test, inflamed mucosa with exudate ulcerations can be observed, and biopsies are taken to determine the histologic characteristics of the...
01:30Inflammatory Bowel Disease II: Crohn's Disease
Inflammatory bowel disease, commonly known as IBD, refers to a collection of disorders that lead to persistent inflammation of the gastrointestinal tract. The two types of IBD are ulcerative colitis, which impacts the colon, and Crohn's disease, which can involve any part of the gastrointestinal segment.
Crohn's disease
Crohn's disease is a chronic, systemic inflammatory bowel disease (IBD) that predominantly affects the gastrointestinal tract. It is marked by...
01:21Inflammatory Bowel Disease V: Surgical Management
Here are some common surgical interventions for IBD:
01:27Inflammatory Bowel Disease I: Ulcerative Colitis
Inflammatory bowel disease, or IBD, encompasses a group of disorders characterized by chronic inflammation or ulceration of the gastrointestinal tract.
Risk Factors
The exact cause of IBD remains unclear, although it is believed to be due to a mix of genetic, environmental, microbial, and immune factors. Genetic factors are significant in determining susceptibility to IBD, with family history being a critical risk factor. Individuals with a first-degree relative who has IBD are at...
01:17Chronic Bowel Disorders: Introduction
Irritable Bowel Syndrome (IBS) is a common disorder affecting the gastrointestinal tract. The distinctive feature is recurrent abdominal pain associated with altered bowel movements, manifesting as constipation, diarrhea, or fluctuating between both. The...
01:29Inflammatory Bowel Disease IV: Pharmacological Management
Pharmacologic...