Lessons Learned from a Systems Approach to Engaging Patients and Families in Patient Safety Transformation.

Area of Science:

• Healthcare Management
• Patient Engagement
• Quality Improvement

Background:

• Effective patient- and family-centered care necessitates engaging patients and families in health system redesign.
• Lessons learned from a six-year initiative to establish patient and family advisory councils (PFACs) for healthcare quality and safety improvement are presented.

Purpose of the Study:

• To describe the barriers and facilitators of adopting, implementing, and sustaining a systemwide Patient and Family Advisory Councils on Quality and Safety (PFACQS) model.
• To share successful strategies for PFACQS implementation in a large, geographically diffuse health system.

Main Methods:

• Conceptual article detailing experiences with a systemwide PFACQS approach adopted in 2012.
• Analysis of strategies for successful adoption, implementation, and sustainability.

Main Results:

• Successful strategies include active board engagement and mentorship by experienced patient advocates.
• Co-creation and mentorship enhance engagement of local PFACQS community members.
• Clear alignment with organizational quality and safety goals is crucial.

Conclusions:

• Implementing PFACQS requires leadership commitment to transparency, respect, and trust.
• Clear guidelines, structures, and processes facilitate adoption and sustainability.
• Continuous improvement and adaptation are vital for program success.