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Transition in a paediatric rheumatology unit - experience from a tertiary unit
Patrícia Martins1, Sofia C Barreira1, Ana Teresa Melo1
1Serviço de Reumatologia e Doenças Ósseas Metabólicas, Hospital de Santa Maria, Centro Hospitalar Universitário Lisboa Norte, Portugal; Unidade de Investigação em Reumatologia, IMM, Faculdade de Medicina da Universidade Lisboa.
Acta Reumatologica Portuguesa
|February 3, 2020
Summary
Health care transition programs improve outcomes for adolescents and young adults. A structured approach ensures high patient satisfaction and low dropout rates during the move from pediatric to adult care.
Area of Science:
- Rheumatology
- Adolescent Medicine
- Healthcare Management
Background:
- Health care transition (HCT) is a critical process for adolescents and young adults (AYA) moving from pediatric to adult medical care.
- This study evaluates the effectiveness of a structured HCT program in a pediatric rheumatology setting.
- The transition process at the center begins at age 11, focusing on patient education and self-management skills.
Discussion:
- The study included 126 patients, with 83% successfully transferred to a young adult clinic.
- Patient satisfaction remained high, with only a 10% decrease from pediatric to adult care.
- Low dropout rates were observed, particularly in patients with longer disease duration.
Key Insights:
- A well-structured health care transition program is crucial for optimizing health outcomes in AYA with chronic conditions.
- Patient education and self-management training are key components of a successful transition.
- The findings highlight the importance of tailored transitional care in rheumatology.
Outlook:
- Further research should explore long-term outcomes and patient-reported experiences post-transition.
- Implementing standardized HCT protocols across different pediatric specialties is recommended.
- Investigating the impact of multidisciplinary team involvement in HCT could yield valuable insights.
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