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Author Spotlight: Advancements in Impedance Monitoring for Cochlear Implant Surgery
Published on: August 4, 2023
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A National Iranian Cochlear Implant Registry (ICIR): cochlear implanted recipient observational study
Nader Saki1, Arash Bayat1, Soheila Nikakhlagh1
1Hearing Research Center, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran Hearing Research Center Ahvaz Jundishapur University of Medical Sciences Ahvaz Iran.
The International Tinnitus Journal
|February 4, 2020
Summary
A new national registry for cochlear implant (CI) recipients in Iran, the Iranian CI Registry (ICIR), has been established. This registry will track long-term outcomes, aiding research and improving patient care for CI users.
Area of Science:
- Otolaryngology
- Biomedical Informatics
- Public Health
Background:
- Cochlear implant (CI) recipients in Iran require monitoring of long-term outcomes, educational placement, and quality of life.
- Currently, no national or regional registry exists in Iran for tracking long-term CI user outcomes.
Purpose of the Study:
- To introduce the design and implementation of a national patient-outcomes registry for CI recipients in Iran.
- To establish the Iranian CI Registry (ICIR) as an integrated framework for data collection, sharing, scientific communication, and collaboration in CI research.
Main Methods:
- The national ICIR is a prospective registry using a secure, web-based platform for data collection via electronic case report forms (e-CRFs).
- Data are collected from clinicians and patients' proxies at predefined intervals, including baseline assessments and follow-ups at 3-month intervals up to 24 months, then annually.
Main Results:
- The ICIR software features a user-friendly interface for data entry, categorizing information into personal, clinical, surgical, and outcome subsets.
- Key parameters include audiometric performance, device use, comorbidities, quality of life, and health-related utilities across various CI manufacturers.
Conclusions:
- The ICIR database can be utilized by Iran's growing network of CI centers.
- Clinicians, researchers, and policymakers can leverage this database to enhance CI devices, improve recipient management, and develop national guidelines.
