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Parents' Experiences with Implementing Therapy Home Programs for Children with Down Syndrome: A Scoping Review.

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Parents implementing occupational therapy home programs for children with Down syndrome face challenges. Key factors influencing compliance include contextualization, the parent-therapist relationship, and parental emotional burden.

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Area of Science:

  • Pediatric Occupational Therapy
  • Family-Centered Care
  • Child Development

Background:

  • Home therapy programs are crucial for children with Down syndrome.
  • Parental compliance with therapy recommendations significantly impacts outcomes.
  • Understanding parental experiences is vital for effective intervention delivery.

Purpose of the Study:

  • To explore parents' experiences with implementing occupational therapy home programs for children with Down syndrome.
  • To identify factors influencing parental compliance with home-based therapy activities.
  • To inform the development of more effective and supportive home therapy interventions.

Main Methods:

  • A scoping review methodology was employed.
  • Included peer-reviewed articles published between January 2003 and January 2018.
  • Six articles detailing parents' experiences with occupational therapy home programs for children with Down syndrome met the inclusion criteria.

Main Results:

  • Three emergent themes: emphasis on contextualization of therapy into daily routines, the significance of the parent-therapist relationship, and the emotional burden experienced by parents.
  • Parents' ability to integrate therapy activities is influenced by how well these activities fit into their existing family routines.
  • The quality of communication and collaboration between parents and therapists plays a critical role in adherence.

Conclusions:

  • Therapy interventions should be designed to seamlessly integrate into the family's daily life.
  • Practitioners must consider parents' emotional well-being and individual learning styles when developing home programs.
  • A family-centered approach that acknowledges contextual factors and supports parents emotionally is essential for successful home therapy implementation.