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Performance Measures Based on How Adults With Cancer Feel and Function: Stakeholder Recommendations and Feasibility
Angela M Stover1,2, Benjamin Y Urick3, Allison M Deal2
1Department of Health Policy and Management, University of North Carolina at Chapel Hill, Chapel Hill, NC.
JCO Oncology Practice
|February 20, 2020
Summary
Patient-reported outcome measures (PROMs) are feasible and acceptable for home collection during cancer therapy. These patient-centered performance measures (PMs) can enhance quality assessment in evolving healthcare payment models.
Area of Science:
- Oncology
- Health Services Research
- Patient-Reported Outcomes
Background:
- Patient-reported outcome measures (PROMs) assess patient well-being and function, offering potential for evaluating healthcare quality.
- Integrating PROMs into performance measures (PMs) requires stakeholder input and feasibility testing.
Purpose of the Study:
- To elicit stakeholder recommendations for PRO-based performance measures (PMs) in oncology.
- To conduct feasibility testing of PROMs for home collection during systemic cancer therapy.
Main Methods:
- Interviews with 124 stakeholders (patients, caregivers, clinicians, administrators) identified priority symptoms and risk adjustment variables.
- Feasibility testing involved home-based PROMs collection from 653 patients across six cancer centers.
- Feasibility was defined as ≥75% PROM completion and ≥75% patient acceptability.
Main Results:
- Key PRO-PMs included gastrointestinal symptoms, depression/anxiety, pain, insomnia, fatigue, dyspnea, physical function, and neuropathy.
- High feasibility was demonstrated with 93% of patients completing PROMs, and 77% without reminders.
- Over 95% of patients found PROM items easy to understand and complete, indicating high acceptability.
Conclusions:
- Stakeholders support PRO-based PMs as a valuable addition to quality measurement in oncology.
- Home collection of PROMs during systemic therapy is feasible and acceptable to patients.
- PRO-PMs can contribute to performance-based care models emphasizing outcomes.
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