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Preimplantation genetic testing legislation and accessibility in the Nordic countries
Julius Hreinsson1, Kersti Lundin2, Erik Iwarsson3,4
1Mount Sinai Fertility, Toronto, ON, Canada.
Acta Obstetricia Et Gynecologica Scandinavica
|February 28, 2020
Summary
Nordic countries have similar regulations for preimplantation genetic testing (PGT) of inherited disorders but vary in accessibility and PGT for aneuploidy. Harmonizing legislation is recommended for equitable access to reproductive technologies.
Area of Science:
- Reproductive Medicine
- Genetics
- Healthcare Policy
Background:
- Assisted reproduction technologies (ART) and preimplantation genetic testing (PGT) aid patients with genetic disorders.
- PGT for monogenic disorders and structural rearrangements is established, but PGT for aneuploidy remains debated.
- Legislation in reproductive medicine is not keeping pace with technological advancements.
Purpose of the Study:
- To compare the legislation and accessibility of preimplantation genetic testing (PGT) across Nordic countries.
- To assess the current regulatory landscape and uptake of PGT services in the region.
Main Methods:
- A structured online survey was conducted among experts in the Nordic countries.
- The survey focused on legislation, accessibility, and implementation of PGT.
Main Results:
- Regulations for PGT of monogenic disorders and structural rearrangements are similar, but accessibility differs due to national vs. private clinic availability.
- Norway has the most stringent regulation, requiring national board evaluation for all couples.
- Availability of PGT for aneuploidy varies significantly, with Finland and Iceland allowing it, Denmark and Sweden offering it under research protocols, and Norway prohibiting it, leading to lower utilization in the region compared to other countries.
Conclusions:
- Harmonization of legislation and accessibility for PGT is needed across Nordic countries.
- Scientific advancements in reproductive medicine require informed political decision-making.
