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Online Self-Management Support for Family Caregivers Dealing With Behavior Changes in Relatives With Dementia (Part
Judith G Huis In Het Veld1, Bernadette M Willemse2, Iris Fm van Asch2
1Department of Public and Occupational Health, Amsterdam University Medical Center, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Online support for dementia caregivers did not improve self-efficacy, even with personal email contacts. Future research needs higher engagement rates for effective interventions for family caregivers.
Area of Science:
- Gerontology
- Digital Health
- Caregiver Support
Background:
- Online health professional contact offers potential support for family caregivers of individuals with dementia.
- Family caregivers face challenges managing behavioral changes in relatives with dementia.
Purpose of the Study:
- To evaluate the effectiveness of an online self-management support intervention for family caregivers of people with dementia.
- To compare interventions with and without personal email contact with a dementia nurse.
Main Methods:
- A randomized controlled trial involved 81 family caregivers.
- Three arms: major (email, videos, e-bulletins), medium (videos, e-bulletins), and minor (e-bulletins only).
- Primary outcome: caregiver self-efficacy; secondary outcomes: behavior problems and relationship quality, measured at baseline, 6, and 12 weeks.
Main Results:
- No significant difference in self-efficacy between the major and minor intervention groups.
- The medium intervention showed a negative trend in self-efficacy compared to the minor intervention.
- No significant differences were found in behavior problems or relationship quality across groups.
Conclusions:
- The hypothesis that online interventions with personal email contacts would be more effective was not supported.
- Low engagement with email contacts and online videos may have influenced results.
- Future research should focus on strategies to increase participant engagement in online interventions.
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