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The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple
Peter Joseph Jongen1,2, Gezien Ter Veen3,4, Wim Lemmens5
1Department of Community and Occupational Medicine, University Medical Centre Groningen, University of Groningen, Groningen, Netherlands.
Journal of Medical Internet Research
|March 10, 2020
Summary
This study found that the MSmonitor program did not significantly improve empowerment in multiple sclerosis patients within a short timeframe. High program usage did not correlate with improved self-efficacy, autonomy, or self-management.
Area of Science:
- Clinical Informatics
- Rehabilitation Medicine
- Patient Self-Management
Background:
- Empowerment is crucial for individuals with chronic diseases to self-manage, enhancing autonomy and participation.
- MSmonitor is an interactive web-based program designed for self-management and multidisciplinary care in multiple sclerosis (MS).
- The program includes various assessment tools, such as fatigue and quality of life questionnaires, and the 'Quick Scan' composite measure.
Purpose of the Study:
- To evaluate the short-term impact of the MSmonitor program on patient empowerment in individuals with multiple sclerosis.
- To assess changes in self-efficacy, participation, autonomy, and self-management among MS patients using MSmonitor.
Main Methods:
- A quasi-experimental study was conducted with 21 MS patients using MSmonitor and 24 in a control group.
- Assessments included the Multiple Sclerosis Self-Efficacy Scale (MSSES), Impact on Participation and Autonomy (IPA), and Partners In Health (PIH) questionnaire.
- Data were collected at baseline and 4 months, with statistical analysis using paired t-tests and chi-squared tests.
Main Results:
- No significant short-term improvements were observed in self-efficacy, participation, or autonomy for the MSmonitor group.
- The PIH knowledge score showed a statistically significant improvement (P=.02) in the MSmonitor group.
- The control group showed no changes in any measured outcomes; MSmonitor utilization was high (83% program components, 95% Quick Scan).
Conclusions:
- First-time users of MSmonitor and their healthcare providers should not anticipate short-term gains in empowerment indicators.
- The lack of observed effect on empowerment is not attributable to low program or Quick Scan usage.
- Further research may be needed to explore longer-term effects or optimal implementation strategies for MSmonitor.
