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Updated: Dec 26, 2025

Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
[Possibilities and challenges of perinatal hospice-palliative care]
1Általános Orvostudományi Kar, Magatartástudományi Intézet,Semmelweis EgyetemBudapest, Nagyvárad tér 4., 1089.
Insights
Perinatal hospice care offers holistic support for families facing prenatal diagnoses. Implementing standardized guidelines and continuous training can improve this specialized pediatric palliative care.
Area of Science:
- Medical Ethics
- Pediatric Palliative Care
- Neonatal Medicine
Background:
- Perinatal hospice care addresses complex needs of families with prenatally diagnosed malformations.
- It integrates physical, psychological, and mental support within a holistic framework.
- This specialized care presents unique professional and personal challenges.
Purpose of the Study:
- To analyze the implementation strategies for perinatal hospice-palliative care.
- To identify opportunities offered by this care model.
- To base the analysis on existing professional guidelines and protocols.
Main Methods:
- Review and analysis of professional guidelines and protocols, primarily from Anglo-Saxon countries.
- Identification and description of best practice examples.
- Exploration of challenges and solutions through supportive formative courses.
Main Results:
- Standardized guidelines can serve as foundational tools for proper care and its conditions.
- Guidelines facilitate communication and coordination among collaborating specialists.
- Continuous formation is crucial for developing competencies in palliative care and communication.
Conclusions:
- Perinatal hospice care requires specialized approaches and continuous professional development.
- Consensus-based guidelines are essential for effective implementation and coordination.
- Supportive training programs can address challenges and enhance care delivery.
Abstract:
Perinatal hospice care is a special form of paediatric palliative care, with a focus on prenatally diagnosed malformation, providing physical, psychological and mental support with a holistic approach for the families. Our aim was to analyse how perinatal hospice-palliative care can be implemented and what opportunities it may provide on the basis of available professional guidelines. We introduce study and analysis of the professional guidelines and protocols, mainly from Anglo-Saxon countries, and describe some examples of best practices. Perinatal hospice is a specially demanding care regarding professional and personal challenges. Standardised guidelines based on consensus can serve as starting points, describing proper care and its conditions. Moreover, they can facilitate communication and coordinative processes between the collaborating specialists. Challenging conditions and possible solutions to them can be identified during supportive formative courses. Continuous formation means competency development in palliative care as well as in adequate communication. Orv Hetil. 2020; 161(12): 452-457.
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