[Possibilities and challenges of perinatal hospice-palliative care]

Éva Zsák1, Katalin Hegedűs1

  • 1Általános Orvostudományi Kar, Magatartástudományi Intézet,Semmelweis EgyetemBudapest, Nagyvárad tér 4., 1089.

Orvosi Hetilap
|March 17, 2020
PubMed

Insights

Perinatal hospice care offers holistic support for families facing prenatal diagnoses. Implementing standardized guidelines and continuous training can improve this specialized pediatric palliative care.

Area of Science:

  • Medical Ethics
  • Pediatric Palliative Care
  • Neonatal Medicine

Background:

  • Perinatal hospice care addresses complex needs of families with prenatally diagnosed malformations.
  • It integrates physical, psychological, and mental support within a holistic framework.
  • This specialized care presents unique professional and personal challenges.

Purpose of the Study:

  • To analyze the implementation strategies for perinatal hospice-palliative care.
  • To identify opportunities offered by this care model.
  • To base the analysis on existing professional guidelines and protocols.

Main Methods:

  • Review and analysis of professional guidelines and protocols, primarily from Anglo-Saxon countries.
  • Identification and description of best practice examples.
  • Exploration of challenges and solutions through supportive formative courses.

Main Results:

  • Standardized guidelines can serve as foundational tools for proper care and its conditions.
  • Guidelines facilitate communication and coordination among collaborating specialists.
  • Continuous formation is crucial for developing competencies in palliative care and communication.

Conclusions:

  • Perinatal hospice care requires specialized approaches and continuous professional development.
  • Consensus-based guidelines are essential for effective implementation and coordination.
  • Supportive training programs can address challenges and enhance care delivery.

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