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Appropriating and asserting power on inflammatory arthritis teams: A social network perspective
Wendy Hartford1, Catherine Backman1, Linda C Li2
1Department of Occupational Science and Occupational Therapy, Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.
Patients with inflammatory arthritis (IA) can influence treatment decisions when they feel supported by their healthcare team. Understanding communication dynamics is key to empowering patients and reducing power imbalances in care.
Area of Science:
- Rheumatology
- Health Communication
- Patient Empowerment
Background:
- Inflammatory arthritis (IA) care increasingly uses multidisciplinary teams and patient-centered approaches.
- Effective patient participation in healthcare decisions requires assertiveness and negotiation skills.
- Current clinical settings often limit patient authority, potentially hindering their involvement in care.
Purpose of the Study:
- To identify communication strategies used by IA patients to influence treatment negotiations.
- To understand how IA patients interact with their healthcare network regarding treatment decisions.
Main Methods:
- Qualitative social network approach analyzing data from a larger multidisciplinary care study.
- Semi-structured interviews conducted with fourteen IA patients.
- Thematic analysis used to identify patterns of patient assertiveness and influence.
Main Results:
- IA patients reported loss of identity, control, and agency alongside physical symptoms.
- Patients felt a personal responsibility for managing their healthcare.
- Perceived support from the healthcare team positively impacted patients' influence in treatment negotiations, highlighting a tension between empowerment and disempowerment.
Conclusions:
- Findings offer insights into communication strategies for IA treatment decisions.
- A social network perspective can help clinicians understand patient communication complexities.
- This approach may mitigate power imbalances and enhance patient agency, control, and identity affirmation within their healthcare network.
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