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Cancer support groups--who joins and why?
G Deans1, G B Bennett-Emslie, J Weir
1Cancer Research Campaign, Department of Medical Oncology, Glasgow, UK.
British Journal of Cancer
|November 1, 1988
Summary
Tak Tent, a cancer support organization, surveyed its Scottish members. While members valued social connections and cancer information, they had lower expectations for improved coping and mutual support.
Area of Science:
- Oncology
- Social Sciences
- Healthcare Management
Background:
- Tak Tent is a cancer support organization with 14 groups, primarily in Scotland.
- Cancer support groups play a vital role in patient and caregiver well-being.
Purpose of the Study:
- To assess the demographics of Tak Tent members.
- To evaluate the extent to which the organization met members' expectations for support and information.
Main Methods:
- A survey was conducted in 1985 among members of Tak Tent's Scottish groups.
- 146 members (79% response rate) completed questionnaires detailing their experiences and expectations.
Main Results:
- Membership comprised mainly cancer patients (36%), relatives (34%), and healthcare professionals (21%).
- Women outnumbered men 3:1, with most members from social classes I, II, or III.
- Members reported satisfaction with making friends, gaining cancer information, and meeting others with similar experiences.
- Lower satisfaction was reported regarding improved coping skills, problem-sharing, and providing anticipated levels of support.
Conclusions:
- Tak Tent successfully provided social connections and cancer-related information.
- There is a need to better align support group activities with members' expectations for enhanced coping and mutual support mechanisms.