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The experience of upper-limb dysfunction after stroke: a phenomenological study.

Judy Purton1,2, Julius Sim2,3, Susan M Hunter2

  • 1School of Science, Technology and Health, York St John University, York, UK.

Disability and Rehabilitation
|April 1, 2020
PubMed
Summary
This summary is machine-generated.

Stroke survivors experience significant life changes due to upper-limb dysfunction, impacting daily activities and self-perception. Rehabilitation professionals must acknowledge these challenges to aid recovery and restore a sense of self.

Keywords:
Strokeactivityidentityparticipationpersonal carerolesself-image

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Area of Science:

  • Neurology
  • Rehabilitation Medicine
  • Psychology

Background:

  • Stroke significantly disrupts individuals' lives.
  • The specific impact of upper-limb dysfunction post-stroke requires deeper understanding.

Purpose of the Study:

  • To explore stroke survivors' lived experiences of upper-limb dysfunction over time.
  • To identify the challenges and changes associated with upper-limb impairment after stroke.

Main Methods:

  • 13 adult stroke survivors participated in up to four semi-structured interviews over 18 months.
  • Interpretive phenomenological analysis guided the framework analysis of the collected data.

Main Results:

  • Upper-limb dysfunction led to an 'altered way of life,' including difficulties in personal care, valued activities, and social roles.
  • Survivors experienced a 'disrupted self' characterized by feeling devalued, altered self-image, and changes in identity.

Conclusions:

  • Rehabilitation professionals must recognize the profound impact of upper-limb dysfunction on survivors' lives.
  • Restoring upper-limb function is crucial for regaining a meaningful life and coherent sense of self post-stroke.
  • Extended therapy for functional recovery or compensatory strategies can help survivors find meaning and maintain self-coherence.